Desktop Helper 3 - Supplementary Information 1 - Questions to be asked over a number of visits to help to develop an understanding of personalised needs and goals to direct support

27 Apr 2022
Respiratory conditions
  • COPD
Respiratory topics
  • Disease management
  • End of Life
Type of resource
Other

S1 Questions to be asked over a number of visits to help to develop an understanding of personalised needs and goals to direct support

  • What is a typical day like for you—tell me what you do starting with getting up and ready for the day?
  • What have you given up or had to change over the past 6 months/3 years?
  • What would you like to do but is very hard for you to do right now?
  • What would you like to be able to do better/more often/again?
  • Tell me how you think of yourself 10 years ago and now
  • What is your greatest fear or concern for you or your family about COPD?
  • What about going to the hospital?
  • What about a care home or living with family?
  • What would you like me to put in your medical record for everyone to know about your wishes, fears and needs?
  • Have you been concerned about dying? Do you have plans or wishes about dying such as where and what end of life treatment you want?  Have you discussed this with your family and carers?
  • Have you completed an Advance Care Directive or Living Will?

Podcast: A good Life not a Good Death, BMJ Podcast by Atul Gawande

https://soundcloud.com/bmjpodcasts/atul-gawande-good-life-not-good-death

 

Practice Points

Take a moment to consider the last 3 people with COPD you have seen in your clinic. Were you able to explore any of these areas? Were there any barriers to discussing them?

Develop or find a resource for your team that highlights local resources for people and families living with COPD.